Martha, United States

I am United by Unique in my cancer journey. I was diagnosed in the midst of the Covid pandemic. In addition, I am a Licensed Independent Clinical Social worker, and mother to three adult children. I went to every part of treatment, alone. I was dropped off and picked up after the port placement, I drove myself to every appointment. Although I found great strength in my independence, it was lonely and isolating.

As I started chemotherapy, I was struck by the lack of connection to other patients; all isolated by curtains, doors and masks. No one ever came to check on how I was coping, what my story was, or was I need of any services. As a mental health clinician, I was disheartened, not just for me but for all those I saw for the 20 weeks of chemotherapy. Then enter radiation for 21 days. I again, went by myself. After each session I walked out alone, often leaving as staff completed their day. All alone again. I never "rang a bell," received applause or acknowledgment for what I just endured. 

As I return to the medical practice for follow up appointments, I remain disheartened with the lack of attention to people's mental health and well being. We need to care for the whole person, not just the medical disease/issue. A patient can experience depression, anxiety, loss and  trauma from diagnosis, treatment and after care. 

I want to tell my story; to speak for patients, survivors, about the importance of self advocacy, coping strategies, and the impact on mental health. I have a unique perspective of being a care provider and a survivor.  We all need a place to share our story, our experience; to give voice to those who have become victimized, isolated, and marginalized.